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Handouts for Medical Services

Click on the condition below to access resources regarding advocacy, treatment, background knowledge, and lifestyle tips.

EHLERS-DANLOS AND HYPERMOBILITY
POTS AND DYSAUTONOMIA
MAST CELL RELATED DISORDERS
GASTROPARESIS
MEDIAN ARCUATE LIGAMENT SYNDROME
CSF LEAKS
CHIARI MALFORMATION
CRANIOCERVICAL INSTABILITY

EHLERS-DANLOS AND HYPERMOBILITY

MEDICAL ALERT CARDS FOR EDS (GENERAL)
MEDICAL ALERT CARDS FOR VARIOUS EDS TYPES
ANAESTHESIA PROTOCOL
ANAESTHESIA PROTOCOL (PEDIATRIC)
DR SPANOS: LIFESTYLE TIPS, DISABILITY, VARIOUS SPECIALIST HANDOUTS
EDS SOCIETY: COMPREHENSIVE LIST OF HANDOUTS FOR DOCTORS AND PATIENTS
EDUCATOR AND PARENT SCHOOL GUIDE
SCHOOL TOOLKIT
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POTS AND DYSAUTONOMIA

MEDICAL ACCOMODATION CARDS FOR VARIOUS DYSAUTONOMIA TYPES
COMPLETE GUIDE TO POTS
POTS EXERCISE PROGRAM
DYSAUTONOMIA HANDBOOK
POTS TREATMENT PROGRAM
EMPLOYMENT
PREGNANCY
GP GUIDE TO POTS
TIPS FOR PARENTS OF KIDS WITH POTS
VARIOUS DYSAUTONOMIA BROCHURES
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MAST CELL RELATED DISORDERS

MEDICAL ALERT CARD FOR MCAS
EMERGENCY SUPPORT RESOURCES
ANAESTHESIA PROTOCOL
ANAESTHESIA PROTOCOL (PEDIATRIC)
MEDICATIONS TO AVOID
OVERVIEW OF MCAS
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GASTROPARESIS

GASTROPARESIS DIET
REVIEW: SYMPTOMS, DIAGNOSIS, DIETARY, TREATMENTS
TUBE FEEDING AT HOME
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MEDIAN ARCUATE LIGAMENT SYNDROME

MALS BROCHURE
TUBE FEEDING AT HOME
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CSF LEAKS

CSF LEAK BROCHURE
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CHIARI MALFORMATION

CHIARI BRAIN POSTER (SYMPTOMS, TREATMENT, DIAGNOSIS)
CHIARI PATIENT PRINTABLE HANDOUTS
CHIARI EXERCISE GUIDE
CHIARI PATIENT HANDBOOK
CHIARI GUIDE FOR PATIENTS AND CAREGIVERS
PEDIATRIC CHIARI PATIENT PRINTABLE HANDOUTS
CHIARI SYMPTOMS (FROM CHIARI BRIDGES)
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CRANIOCERVICAL INSTABILITY

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Resources gathered and webpage designed by Kimberly Czotter. Last updated Feb 28, 2022.

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